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A little discouraged

I have called my doctor on schedule, and told her voicemail that not only is the Symbicort not helping, the cough is getting noticably worse again - noticed by people other than me.  It's getting deeper, harder, and wetter again.  So now I wait for her to call me back (she's very good about that,) and we decide what the next step is.  Possibly an ENT, possibly a pulmonologist - she'll tell me where she wants to start. 

All the doctors up at UConn are in my insurance plan, so I'm going to keep going there.  The care that Bob and I have gotten at Dempsey has been exemplery, and to my mind there's a certain attraction to having all of the medical records in one place where the new doctor can access them, rather than scattered across the state in an assortment of unrelated offices.  But that's just me.

I'm tired of this.  It's reached the point of being just a touch soul-crushing.  Completely aside from the fact that it *hurts* to cough this hard this much, and that it's physically exhausting, people actually *back away* when you sound like you've got TB or some other filthy disease.  Then there's the jokes "if you don't stop coughing soon, we'll have to have you put down."  It was funny the first dozen times.  Not so much any more.


Okay, I'm done whining.  Thanks for listening.



( 8 comments — Leave a comment )
Oct. 13th, 2011 08:09 pm (UTC)
I'm so sorry, sweetie. I had an allergic cough when I was a kid and I remember how painful and alienating it was. Still when I get a cold, I will end up coughing for a month, and that's the worst part I think. So I completely sympathise. And I really wish that it's something simple like, "Oh look! You're allergic to this thing that is easy to stay away from. Problem solved! Cough over!"

Good luck!
Oct. 13th, 2011 10:01 pm (UTC)
I hope they can find something to give you some relief soon and solve the problem.
Oct. 13th, 2011 10:11 pm (UTC)
Yeah, I know what it's like to be so sick so long and just be going in circles. Don't know about you but to me it felt like no one cared but me and I had to FIGHT to get any help, and I was way to weak to fight! Hell I was too weak to do ANYTHING, let alone an exhausting thing like do battle. (I essentially starved for a few months this summer. It leaves you with very little energy to even think, let alone physically move.)

I'm still fighting, actually, I just found one thing that helps a lot so that I can hang on a lot easier in the meantime (no problem has been solved, I simply am not starving any longer, so I've stopped one of the symptoms of whatever the hell has gone wrong with my guts).

I can't even say anything cheerful about the situation (of being so ill). There isn't any bright side at all. In my case, I had a few pounds to spare (not that many, mosty just a few cosmetic pounds) so I look cuter now, so that's my bright side (it's a bit weak) but I can't see any to yours. I had a 5-year lingering cough due to pneumonia at 5, and there was nothing good about it at ALL.
Oct. 13th, 2011 10:15 pm (UTC)
I hope the folks at UConn can help you. It's horrible that you've had to deal with this for so long.
Oct. 14th, 2011 01:04 am (UTC)
*hug* Dealing with something chronic while raising a toddler...my hat is off. Hang in there and be your own best, most vocal, most well-informed advocate. Squeaky, coughing, informed wheels get oiled. Or treated. You know what I mean.
Oct. 14th, 2011 10:40 pm (UTC)
I'm glad you're going in to see the specialist, this has been going on far too long.

Please take care.
Oct. 16th, 2011 10:55 pm (UTC)
::hugs:: All I can do from here.

If you can somehow have another adult come with you to the pulmonologist it could be helpful. I went with Rob by pure coincidence -- we had other plans on the same day that involved driving in the same direction -- and it turned out to be a good thing. A lot of new medical vocabulary went past our ears, and there were two of us to catch the words.

I know what you mean about the jokes & the backing off -- just before my pneumonia was diagnosed, I had someone leave my cubicle, go back to his desk, and call me from there. On the plus side, I got much faster turnaround on my emails to the software engineers, because they know if I dont' get an answer, I usually walk down and ask them in person.

About your TB joke, I was irritated that our primary care physician wouldn't run a TB tine test even though Rob had not long before gotten back from his overseas stint with internationals from everywhere, was then working with "the public" at UConn, and there had been a reported case in the state. Apparently there's state-mandated paperwork if the test is given -- so they did an xray and left it at that. Harrumpf.

Please do mention the mouse oubliette to the dr if you haven't already so she can rule out hantavirus. (About which I know almost nada except it's nasty and thankfully uncommon and carried by mouse poop.)

Feel better soon!
Oct. 18th, 2011 12:44 pm (UTC)
This is just awful--I'm sorry this is happening. Unfortunately, in the words of Jack Kerouac, I have nothing to offer except my own confusion. I hope it gets better.
( 8 comments — Leave a comment )